Yeah, I know. I'm not really excited about it either. We've been to 4 doctor's offices in the past 2 weeks, and we've seen 5 doctors.
Within the last 3 weeks Isaac has started having an entirely new kind of seizure. He has also run an intermittent low-grade fever.
We've also known for about 7 months that Isaac's hip is dislocating about 50% out of the socket in certain positions.
So two of his doctors have recommended surgery: the neurologist and the orthopedist. The neurologist has recommended an implant that might reduce Isaac's seizures. The orthopedist wants to do hip surgery.
As we told the neurologist about the orthopedist's recommendations, she told us that if he is having a lot of pain in his hip, that could be causing the new seizures and the low-grade fever! Right, so my son is in pain, and I didn't even have a clue. I'm feeling really terrible about that right now!
So, we'll be seeing the orthopedist again soon, to have more x-rays taken, and to hear his recommendations. This surgery is quite invasive, and would mean 6-8 weeks in a full body cast or brace. I told Doug that we would definitely need nursing help following that surgery!
We will not likely do anything about the new seizures until after we have resolved the hip issue. If it is pain that is causing the new seizures, then following corrective surgery, they should stop. Normally. Ideally. In the usual cases. (Yeah…I'm not holding my breath on that one!)
Needless to say, we are not feeling very happy about these situations. We hate to see new seizures, no matter what is causing them. We feel horrible to think that Isaac is hurting all the time. We loathe the thought of another surgery, especially because he did so poorly during the last surgery. We abhor the idea of more equipment and gadgets being implanted in his little body.
I was going to include links to the two surgeries so that you could look at them, but I just got overwhelmed while reading the sites and had to stop. When it's time to go forward with them, I'll give you a better idea of exactly what will be happening.
I know that my God is in control. I know that God has His hand on Isaac's life and ministry. I know that God has allowed us to walk some very difficult paths so that others would see Him in Isaac. I believe that Isaac causes people to think about God, and reconsider what they believe about Him. I have witnessed folks response to the peace that Isaac has, and to the peace that God has poured out on us.
Sometimes I don't like where God leads us, but I know it is for my good and for His glory. So "I will follow, follow, all the way" just like the old hymn says. It will be very interesting to see God work through this next stage of Isaac's life.
We certainly would appreciate your prayers for wisdom as we make the decisions for which procedures to do, especially the one on his hip. There are innovative doctors doing wonderful things for our kiddos, but they are not covered by Isaac's insurance, nor are they in the state of Florida. We need wisdom to choose what is best, while considering all the factors involved.
Thank you, in advance, for carrying us to God's throne in prayer.