Category: Isaac Update

Friday, 23 February 2007

by ObtainingMercy, posted in Isaac Update

Isaac had a short seizure
last night after supper and then started vomiting around 3:30am – that
continued until around 6 this morning.  He's been fine although weak
today. 

Then
tonight he had more short seizures, then started vomiting around
10:30.  We'll of course be headed to the doctor tomorrow.  The vomiting
can be from delayed gastric emptying or from shunt malfunction.

Monday, we head to Miami Children's
Hospital to be seen by an epilepsy specialist.  Please pray that there
is a room available at the Ronald McDonald House – we're on the waiting
list right now.

Also,
of course, please pray that his stomach will settle and he can sleep
tonight – and so we can get sleep too.

Whew, it's been a loooooooong day.

Alesha

Update on Isaac’s sleeping

by ObtainingMercy, posted in Isaac Update

I forgot to update on Isaac's night time escapades!  
He slept from 11 PM to 7 AM last night.  Not bad, but not as great as
the night before.  And tonight…it's almost 11 PM and he's still going
strong!  Hopefully he'll conk out soon!

Wednesday, 21 February 2007

by ObtainingMercy, posted in Florida Weather, Isaac Update

Praise the Lord - Isaac slept through the
night last night!(I've given up trying to come up with a nickname,
because I start writing and then forget and use his name.) 

Laura, I know you will understand my elation about
him sleeping all night! 

With all
of his diagnoses, a full night's sleep is a thing to be celebrated and
announced with much rejoicing.

We have just recently gotten a "hospital bed" for
him to sleep in.  (He had been sleeping in a recliner for about a year –
due to stomach issues and "kicking" issues.  If laid down flat in a
bed, he kicks himself into a sweaty frenzy and will stay awake all
night.  Thus, the recliner.)

So
with the head elevated and the "knee bend" in the middle, he'd been
doing fair – not too much kicking – but still not sleeping all through
the night.  And also he's been sleeping in a horrible position.  I know
for most kids any position will do, but for kids with CP a night of
sleeping with legs bent and toes pointing makes for a day of leg and
foot spasms and cramps.

Our
therapist suggested putting his leg braces on for the night and using a
bolster under his knees.  It worked like a charm!  He was asleep by 8:30
and slept for over 12 hours.  Glory hallelujah!

Needless to say, we'll be trying it again tonight –
we'll see how it goes.

The weather
here is beautiful today in the Deep South – mid 70s and blue skies.  I
don't mean to rub it in – I'd appreciate some beautiful snow every now
and then, too. 

I even got
to eat lunch outside with my hubby today, while Isaac did Occupational
therapy in the clinic.  That was a nice treat.

Ya'll have a peaceful day,

Alesha

Sunday, 18 February 2007

by ObtainingMercy, posted in Blessings, Isaac Update, What's Happening

I love the nickname's
everyone uses for their children and spouses – very interesting and
creative names.  So I'm trying to come up with something for my son.

Until then…

I
knew he wasn't feeling quite himself today.  Usually hubby and I take
turns going to church if he's not well.  This morning was my turn to
go.  But I just didn't feel peaceful about that and hubby gave me
freedom of choice about it.  (We've been in the ER twice in the past 2
weeks with my son, he hasn't been sleeping all night, and I work
full-time.)

Sure enough we had
seizure # 7 of the past 10 days.  Another phone call to the doctor
tomorrow.  We've increased his meds twice during the past 2 weeks. 
Should not still be having breakthrough seizures.

Very bothersome!

We're
going to a specialist on the 26th.  I'm very skeptical that they can
really tell us anything new.  I know God can give them wisdom from
above, though.  I just hope it's not dependent on MY faith.  It is
really lacking that we can/will find a rhyme or reason for these
seizures. 

It's a beautiful day,
though pretty cool again for this Southern girl.  I'd love to re-pot
some of my outdoors plants, but it's a little early yet.  So I guess
I'll wait awhile.

Here's my boy on a
much better day in  December. 

100_2836

Here's his list of
challenges:

hydrocephalus,
epilepsy, cerebral palsy, asthma, GERD, delayed gastric emptying,
various eye diagnoses, developmental delays, non-verbal (for the most
part – he can say a few words with great meaning - "more", "hello",
"Ma", "wuv", and his latest accomplishment "hah-ay-ooo-uh"
{hallelujah}), and non-mobile.

Here's
what I think about him:

He's the
joy of my heart and love of my life, second only to my hubby. 
We adopted him at 18 months old.  Next Thursday will be the 5th
anniversary of his "Gotcha Day". 

Here's what I believe about being in this trial:

There is a reason.  Some other doctors and nurses
must need to meet my boy.  Right now, only beauty is helping me stay
balanced – beauty in God's word, in God's nature, in the pics and
stories on some other's blogs.  Those things are helping.

And I am grateful.

Alesha