Sunday, 18 February 2007

I love the nickname's
everyone uses for their children and spouses – very interesting and
creative names.  So I'm trying to come up with something for my son.

Until then…

knew he wasn't feeling quite himself today.  Usually hubby and I take
turns going to church if he's not well.  This morning was my turn to
go.  But I just didn't feel peaceful about that and hubby gave me
freedom of choice about it.  (We've been in the ER twice in the past 2
weeks with my son, he hasn't been sleeping all night, and I work

Sure enough we had
seizure # 7 of the past 10 days.  Another phone call to the doctor
tomorrow.  We've increased his meds twice during the past 2 weeks. 
Should not still be having breakthrough seizures.

Very bothersome!

going to a specialist on the 26th.  I'm very skeptical that they can
really tell us anything new.  I know God can give them wisdom from
above, though.  I just hope it's not dependent on MY faith.  It is
really lacking that we can/will find a rhyme or reason for these

It's a beautiful day,
though pretty cool again for this Southern girl.  I'd love to re-pot
some of my outdoors plants, but it's a little early yet.  So I guess
I'll wait awhile.

Here's my boy on a
much better day in  December. 


Here's his list of

epilepsy, cerebral palsy, asthma, GERD, delayed gastric emptying,
various eye diagnoses, developmental delays, non-verbal (for the most
part – he can say a few words with great meaning - "more", "hello",
"Ma", "wuv", and his latest accomplishment "hah-ay-ooo-uh"
{hallelujah}), and non-mobile.

what I think about him:

He's the
joy of my heart and love of my life, second only to my hubby. 
We adopted him at 18 months old.  Next Thursday will be the 5th
anniversary of his "Gotcha Day". 

Here's what I believe about being in this trial:

There is a reason.  Some other doctors and nurses
must need to meet my boy.  Right now, only beauty is helping me stay
balanced – beauty in God's word, in God's nature, in the pics and
stories on some other's blogs.  Those things are helping.

And I am grateful.