All About Isaac

Isaac’s Adoption Story

 

Doug and I were married in 1988, just 3 months after we graduated from college.  We had dated off and on during our college years, soon became best friends, and then, much to my surprise (but not to Doug’s surprise, at all, to hear his side of this tale) we fell in love.  He proposed in February of our senior year and we were married in July.

 

We were excited to start our family and although we tried to conceive for several years, we were unable to have children naturally.  After much discussion and prayer, we decided to adopt.

 

We investigated and communicated with several adoption agencies, only to realize that to a young couple working in the ministry, private adoption through an agency was far too expensive for us to pursue.  We briefly considered a private open adoption, only to have it fail.  It was heart breaking, and we decided that we would enjoy our child-free family as best we could, and we did not pursue adoption any further.

 

Through a series of circumstances, Doug and I made a temporary move into a home with seven children.  The parents were divorced and the mom was facing serious surgery in another state.  With the blessings of the grandparents and our pastor, we moved in.  After that month of caring for the children, Doug and I realized we were not content with our child-free existence any longer, and we decided to pursue adoption through our state.

 

We attended the requisite classes with our county’s Department of Children and Family, graduated with our certificate, passed our home study and waited for a call about a child who needed a home.

 

That phone call came in August of 2001.  They told us about a little boy, named “Nicholas”, 15 months old, who would soon be free for adoption.  They told us that he had a few medical issues and was slightly developmentally delayed.  We communicated with his foster parents who were sweet Christian grandparents; and we visited with him for the first time in September.

 

Honestly, his foster mom had sent me pictures of him, and I totally believed that when I saw him in those pictures that I would be overwhelmed with love for this little boy.  I was not.  In fact, I spent much time in tears and prayer wondering if I could love this little baby with the funny shaped head.  I just wasn’t sure.

 

However when we walked into the house and saw Isaac for the first time, it was truly “love at first sight.”  In fact, as we drove home, we were giddy with the emotion of it all.  Our hearts had been knitted to him in that one visit.  His foster parents later told us that they also knew after that visit that we were the ones to be his parents.  They said he always cried when other people held him; but we both held him for long periods of time during that first visit and he was very happy with us.

 

In the next several weeks, we were allowed to read Nicholas’ file with the county, as well as travel with him to doctor’s visits.  He also faced major surgery in October of 2001, and we were able to be with him and his foster parents for that.  His foster mom later told me that she thought if we were able to be “scared off” from adopting Nicholas, it would be during the time of his surgery and recovery.

 

It was a bit overwhelming for us, but we were already in love with this little boy and there was no way we could abandon him now.

 

Finally in February, his birth parents’ rights were terminated by the courts, and he was free to be adopted.  The courts ruled on Tuesday, and we brought him home to live with us on Friday.  It was a wonderful day!

 

We had a few months of transition time.  His foster parents kept in close contact with us during this time.  It was almost “too” close, as far as we were concerned.  It was very overwhelming to be first time parents, and there was even more pressure as we were followed so closely by the state, county and former foster parents.  We realized, though, how important that was for Nicholas’ safety, just in case his care was going to be more than we could handle.

 

All went well, though, and in May, just three days after his second birthday, our adoption was finalized at the county courthouse.  My parents, as well as Nicholas’ foster parents, were able to be there that day.  It was an incredible day.

 

At his adoption, the judge asked us what we would be naming our new son.  We responded that we would be retaining as his middle name “Nicholas”, because it means “victorious people”.  We felt that with all the medical challenges facing him, he needed to be reminded that he was victorious. 

 

For his first name, we gave him the name “Isaac”, which means “laughter”.  After nearly fourteen years of marriage, God had blessed our union with a son!  We felt a little like Abraham and Sarah who waited so long for the child God had promised them. 

 

Our happy little baby boy Isaac was indeed our “son of promise”! 

 

 

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Isaac’s Medical Information

 

I promised, a few weeks ago, a post on Isaac’s medical conditions.  I’m going to try to be succinct and brief!

(Notice, I did say “try.”  )

Please note, too, and this post is not being written to evoke sympathy from my readers.  This information is a written list or testimony, if you please, of God’s goodness and mercy. 

It’s also a testimony to the miracle that is Isaac!

Isaac was born at 31 weeks.  He weighed 2 pounds 14 ounces.  He had various problems right away.

  • he suffered a Grade III-IV brain bleed immediately before, during or after his birth.  (in an adult, this would be called a “stroke”.)
  • he was positive for opiates and cocaine.
  • he had hydrocephalus (water on the brain)
  • he had a heart murmur.
  • he had hypotension (low heart rate)
  • he had kidney failure.
  • he went into respiratory distress.
  • he began having seizures.
  • he was diagnoses failure to thrive

He was transported to a local children’s hospital where they inserted a shunt in his brain for the hydrocephalus and put in a feeding tube.

Over the years he has added additional diagnoses:

  • cerebral palsy
  • feeding disorder
  • oral aversions
  • asthma
  • crainiosynostosis
  • strabismus
  • exotropia
  • optic atrophy
  • nystagmus
  • ankyloglossia
  • global developmental delays
  • gastroesophageal reflux
  • delayed gastric emptying
  • intractable epilepsy

Since birth, he has had 12 other surgeries.

He takes meds for seizures and a sleep aid.  He takes various supplements to aid his digestion.

He did wear glasses, but then we taught him to use his hands!  He seems to see well enough to know who is around him and he certainly looks at the t.v., so we are foregoing glasses at this time.

The other issues that he had at birth either resolved themselves, or we are checked on a twice-yearly or yearly basis.  For instance, they do an ultrasound once a year to check on his kidneys.  We see the gastro doctor every 6 months, unless we have troubles. 

We also have CAT scans or MRIs to check his shunt every year.  If we have any symptoms of shunt failure, we have those tests run more often.  He has needed his shunt revised three times.

Isaac is still fed via a g-tube, although for many years he did not need one.  He was learning how to chew and talk a bit before his seizures became so severe that he lost those abilities.

Isaac had his first grand mal seizure (since shortly after birth) at age 5, and we have been attempting to get control of them ever since.  For several years he had multiple petit mal seizures every hour.  Truly, I would lose count when I tried to keep up with them just to count them. 

For the past several months, his seizures have been slowing down, and we see only a few rare staring seizures each day.  This is the first time in years that he is getting some relief from them.  We are SO thrilled to see these changes.

We often say that if it weren’t for the seizures, Isaac would be brilliant.  We are excited to see how he progresses during this time of fewer seizures.

For now, Isaac does not sit, stand or walk.  He is wheelchair bound and is completely dependent on his caregivers for all of his daily needs.  We do have any help with Isaac at this time.

As long as Isaac’s heart, lungs and kidneys are healthy he will be doing well.  If he begins to have trouble clearing his airways, we will learn new techniques and equipment to deal with that.  Our main enemy is pneumonia, of course.  We work hard to keep those lungs clear!

~~~~~~~

After listing all of that, I just was to say,

“Bleh!”

None of it matters.

It is just the lingo that you learn when Isaac comes into your life. 

It doesn’t define who he is!

He is a typical 14-year-old.  He loves nothing better than LOUD noises!!!  Especially when he is in a big store with his Dad (because they echo, you know!).

He loves music SO much.  And Veggie Tales.  And Barney.  And Maisy.  And sometimes Elmo.  (He has to be in a mood for Elmo.) And Little Bear.  And much to my dismay, Disney movies! 😉

He adores stringed instruments, particularly the banjo.

He has a wicked sense of humor, and can get tickled at the oddest times.

He used to love to sing REALLY LOUD, but since his voice has changed, he doesn’t seem to like the sound of his own voice.  We are encouraging him to sing more, as we really miss hearing him.

He recognizes “Jingle Bells” and “Happy Birthday” as being really fun songs.

He loves the songs “Oh, How I Love Jesus”, the “B-I-B-L-E” and “Namaan.”

He loves mashed potatoes and chicken and birthday cake (well…really CAKE of any kind makes him very happy!)

He likes to look at books and to be read to.  He is learning to push buttons and to make choices by touching items with his hands.

He loves his Grammy and Papa, and expects to be the center of attention when they are in the room.  He likes “parties”, especially at Aunt Brenda’s house. 

He enjoys attending junior church on Sundays and sits with Ms. Robyn.  She has a wonderful ministry with Isaac, and is introducing the other boys and girls to him each week.  It has been an incredible blessing to be able to sit with my husband in church again, after many, many years of sitting alone.

He loves to be touched, and to touch others, just don’t rub his head, please.  His favorite hug is a head-butt – the harder the impact the better!

This child of mine is just that – a child. 

He is not guaranteed tomorrow – and neither am I.

Neither are you.

He is with us for as long as God deems it best.  And if I have my way, that will be until the trump of God sounds and we are all caught up together with Him in the clouds!  (I Thessalonians 4:17)

Then we can all enjoy the last part of that verse together…

“…and so shall we ever be with the Lord.”

Won’t that be a glorious day?!!

//
//

Such a Nice Weekend

We had a really great weekend here in sizzling hot Florida.  Even the weather took a little break and was not in the high 90's the entire time.  We had a few showers that cooled things off a little bit, too.

On Saturday we decided to go on an adventure.  For us, you know, sometimes an "adventure" means that all three of us are in the truck and we're not going to a doctor's appointment!  So for us to go out of town – and not to a doctor – was an especially adventuresome day.

We took a trip to a grocery store:  Whole Foods Market in Orlando.

We didn't even know about this chain of stores, nor that we had one close by.  So when my brother, Michael, told us about it, we were eager to check it out.  (and praise the Lord for his other recommendation of "don't forget to take a cooler!")

It was one of the best shopping experiences we've ever had.  The employees in the store were extraordinarily helpful and polite. (Unlike the man at the mall last Saturday who asked me NOT to stand in front of his kiosk with Isaac if I wasn't buying anything because I was blocking his display!  And he did not have one customer at the entire enclosure!  So rude!) 

It was Saturday, so of course, the store was very busy; but even the other shoppers were polite and kind and smiled at my child.  Doug commented on it as we were living – that it was one of the nicest shopping trips for Isaac in a long time.  No one stared, or commented…maybe it was just because we were in a bigger city.  I don't know, but we had a nice time there.

Of course, everything was extremely expensive.  I'm going to be checking out their website today to see if they have online coupons or a magazine or newsletter, something that might have the occasional coupon.  If you know of anything, please let me know.

(The first thing I did see on the website this morning, as I grabbed the link for you, was a recipe.  And just look what recipe it was!!!  So funny, considering last week's mix-up!)

We found lots of yummy foods to try.  It was especially nice to have choices in the frozen food sections.  It is good for us to have a few convenience foods in our freezer all the time, and while we can find organic, healthy things at our local grocery store, our choices are very limited.  There's only one frozen organic vegan soup that doesn't contain soy (which I try to avoid); and only one cheeseless vegetarian pizza on a whole wheat crust.  It was really exciting to have so many choices and be able to try a few new dishes.

The produce was lovely and they had a nice selection.  The prices there weren't too bad, about the same as our local store.  If we were presently eating meat or seafood, they had many, many choices, including an octopus salad that was so gross looking I couldn't even stand to take a picture of it!  <<<shiver…>>>

There was a huge deli and pizza bar, along with a massive cold and hot food bar.  There were still lots of things that we really shouldn't eat for our diet, but it was nice to just look and smell.

On Sunday, we were both able to go to church, which is always a blessing.  We also worked really hard all weekend on laundry.  I feel like we made a respectable dent in it! : )

Well, it's lovely to be starting a new week.  I pray that you have a productive and peaceful Monday!

Blessings,
Alesha

Of Avocados and Mangos

I had no idea that I liked mango until I tasted a fresh one!  Wow!  What a difference between that and the mushy stuff you find in the average fruit cup.

I didn't set out to try a new fruit, though.  It all happened like this…

You see, I asked my hubby to pick up an avocado while he was at the grocery store.  I was planning guacamole.

01avocado

This is what he brought home:

01mango

Yep…you can go ahead and laugh.  I certainly did!!!

Well, at least he brought home something very tasty!  And it's those kinds of mistakes that turn into blessings.

Yummmmm…mango!!!

: )
Alesha

It’s Been One of Those Days

Did you ever have one of those days when…

…you sit up in bed and as the ache hits your pain receptors, you think "This is not going to be a good day!"?

…you text your hubby at work, only to hear a message "ding" from across the room?

…the a/c that is limping along decides to just lay down and die?

…you decide not to call your a/c repairman (Dad) because he just has so much to do today?

…you go to feed your child, only to discover that he is wet – diaper, shirt, pad, sheet and mem*ry foam mattress?

…you grab the lift to roll it across the room, and it gets tangled in a writhing mess of extension chords, belts and ties?

…the lift pulls the lamp off the dresser, exploding the light bulb?

…the lamp shades breaks into three separate pieces?

…you have all the makings of a "migraine" headache?

…your church friend emails to say that her mother has only a little while longer to live?

…you think to yourself "This has not been a very good day, but compared to some other people's day, I have absolutely nothing to complain about!"?

THEN did you ever have one of those days when…

…your a/c repair man just happens to pop in at his house at 9:30, and will be over in just a minute to check the a/c?

…you walk into the living room to tell him what the problem is with the a/c, only to hear him say, "It's running!!!"

…you put your hand in front of the vents and feel luscious, icy, cold air blowing?

…your mom says "Let's place an order at Bath and Body Works(!!!)?

…your son is so delighted with himself that every time you speak to him, he smiles and "talks" back?

…you have the fresh ingredients on hand to make a strawberry-banana-cherry smoothie for your and hubby's lunch?

…the migraine medicine actually works and you're able to get a load of laundry washed and dried?

…your a/c repairman comes over to install an exhaust fan and an air vent on your back porch, so the wood won't melt every time you run the dryer?

…at the hottest part of the day, the a/c is still running?

…you sit down to count your blessings and realize that even on the worst of days, you have so very much to be thankful for?

Yep!  It's just been one of those day!

Blessings,
Alesha

A Movie Day for Me

I had a free day today, with Doug and Isaac going to therapy.  So I decided that, in between a little housework, I would treat myself to a movie day.

I thoroughly enjoyed "Wives and Daughters".  It was quite lengthy, but I forced myself to watch the whole thing! : )

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I wanted to thank everyone who took the time to comment yesterday.  I certainly appreciate it.  I did have a friend bring up a very valid question:

How can I subscribe to your blog by email?

I was able to answer that by adding a little box over there in the first column on the right.    It says "Get Email Updates."

You just enter your email, click the button, and then confirm by clicking a link in the first email message they send you.  Then every time I post something on my blog, you will receive an email.

Thanks, Kathy! : )

Well, I guess that's it for today.  I still feel a little "stiff" here in my new blog…isn't that funny?  I guess I need to get use to the "compose" box and I will feel more at home.

Blessings,
Alesha

Welcome to My Blog!

Thank you so much for taking the time to visit me in my new Blog Home.  I really love it here, but I want to hear your feedback as well. 

Is it easy to leave a comment?

Is there anything you find confusing about my site?

Is there anything you saw on Xanga that you would like to see here as well?

I have only moved a few posts from the other server, so my archives only go back to May; but I will be working on that a little each day.  I will also be adding pictures to my albums as time allows.

I am hoping that this will be a good fit for me, and that you, my readers, will enjoy the lack of advertising on my site!  I know I certainly will!  No yucky ads on my web site and no "plugz" on my home page!

I'm also delighted to have a "preview" page that I can check out before a post actually posts on my blog.

So, from our new home to you, we say "Welcome!"

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We hope you enjoy it here as much as we do.
Alesha

Friday, 19 June 2009

*EDIT below

If you are a fan of rip-roaring thunderstorms, you really should come to Florida during the summer. 

Yesterday's
storms were predicted for several hours before they actually got here,
so I was able to get outside in the yard to pick up a few
things…cardboard boxes that hadn't made it into the garbage can, a
piece of tubing that will eventually be part of our central a/c system,
and a watering can.

I also moved a bag of playground sand, then
later wondered if that was such a good idea.  After I came back inside,
I kept feeling twinges all over – my upper back, my hip, my lower
back.  I am happy to say, however, that as of this morning, all is
well!  Nothing seems to be any the worse for wear.  I think I am just
starting to use muscles that have been dormant for a while, and they
were protesting my use of them.  How dare they???

Hey, are you looking for a good mystery to read this summer?  Here's a review of one by my bloggy friend Cheryl at Copperswife.  I'm always excited to get a "thumbs up" on a good mystery series!

I
was happy to be able to tackle a good deal of the laundry yesterday. 
Doug has been doing most of the laundry on the weekends, except for the
week my mom was here.  It's just too much for me to sort, then carry
the clothes to the washer; and then the stretching and bending to move
it from washer to dryer was not a task I could do either.  So, it was
nice to be able to do some of it by myself yesterday.  Now, mind you, I
still have a large stack of undies and pjs sitting on the end of my
couch, but still…some of it got finished. 

Isaac
had a drowsy, slow-moving day yesterday.  I'm not sure what's going on
with him.  I'm hoping that he was just recovering from his busy day of
therapy on Wednesday.  He was certainly in a good mood, though, and we
laughed and giggled all day long.  His laughter is so contagious…I
don't even try to stop myself.  It does good like a medicine…and that
is good for both of us!

Well, I have several things on my to-do
list for today.  One of those is to make my weekly visit to the
chiropractor.  Hopefully, that will go smoothly, and I'll be back home
to finish that to-do list soon.

I pray that you have a great
weekend, and that you are able to assemble with like-minded believer's
in church on Sunday.  If you have no plans to attend, I heartily
recommend that you change those plans and be in the Lord's house if you
physically can.  Your spirit will be fed by the preaching of the Word
of God, and you will be encouraged by the fellowship with other
believers.

Blessings,
Alesha

*Edited to add:  when I returned home from the chiropractor, my mom had swept the house and folded all that laundry!!!  Whooo hooo for mamas!!