Days of Decisions

We spent yesterday in Orlando, left the house at 7 a.m. and got back around 5 p.m.  It was an exhausting day, but we had a little fun too.

Isaac had several tests run in the morning, some of which were a lot of work for Mommy and Daddy.  He doesn't really care to have his head strapped down, or to lay still for multiple x-rays and ultrasound pictures.  So we got the quite the workout (especially Daddy) leaning over exam tables and  keeping head, legs, arms and torso still enough for the technicians.

After that was all finished, though, we were able to go for lunch.  It was a nice treat to have new choices to choose from.  We chose Jason's Deli.  Doug had one of their massive baked potatoes and I had a Portabello Wrapini.  And yes, it was just as yummy as it sounds. 🙂

When our lunch was finished, we headed over to Isaac's neurosurgeon's office, where we had a productive visit with Dr. Gegg.  He listened carefully to our story of Isaac's doing so well immediately following surgery; and then he suggested we change the settings on his shunt.  We decided to go with his recommendation, and are hoping that this will make a difference in his comfort level and his overall enjoyment of life.

It will take time to tell if the setting works well for him, but I will tell you this:  for the first time in almost 3 weeks, he slept the whole night through!  What a blessing that was.  If his sleeping through the night is the only change that takes place, that will be enough for me to know it was a good decision.

When our doctor visit was over, we headed to Whole Foods, where we thoroughly enjoyed shopping through their awesome array of organic products.  We even picked up supper from their food bars:  black beans, yellow rice, plantains and hummus.  The plantains were probably fried, but we just sort of overlooked that…they are too yummy to pass up! 🙂

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Now, I need to ask you to pray for Doug's grandma, Charlene.  She is the most spry octogenarian I have ever known, but during the last year, she has begun to have heart problems. 

She is in the hospital right now, and later this week will be having open heart surgery to repair 3 blockages.  Please pray for her.  She is very special to Doug, as she had such a large part in parenting him. He was raised by his mom who was single from the time he was around 3 years old, and his grandma who was a widow for the majority of his childhood.  He looks on her as his second parent, really.

So, we decided that Doug really needs to be there for Grandma's surgery and he is flying up to Ohio on Thursday to be with his mom and grandma.  He will be gone a week.  Those of you who know how our household functions will know that it is a huge decision for Doug to be gone this long.  If you think of us, we would really appreciate your prayer for Isaac and I while Doug is away.

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I guess that's it for my little update.  I am sorry that my blog has not been very upbeat lately.  It seems that things have been hitting us from all sides, and we are just treading water for now, keeping our heads up.

Through it all, though, we have not lost faith in the ways of our God.  We know that He leads us into seasons of peacefulness, as well as into seasons of storms.  He is the same God, and we can still trust Him; and that is what we have decided that we will do. 🙂

Blessings to you,

Alesha

The Lord Thinketh Upon Me

Hey.

I'm just here to say we're doing ok.  :~)

Isaac had a few rough days at the end of last week – due to the antibiotics that he was on for his sinus infection.  His tummy did not take too kindly to them – again; and we had a few days of tummy aches, lack of sleep, increased seizures and general grumpiness.

At one point, on Friday, I just climbed up into the bed with him, because I had run out of ideas to try to make him happy.  He kept screaming and crying real tears.  You KNOW the real tears almost never happen with Isaac.  It was breaking my heart, but I couldn't discern if he was just "pitching a fit", was overtired or was in pain.

I texted Doug to come home.  I was really at my wits' end.

Turns out he was in pain.  His tummy was hurting. 

After aggressive measures were taken, and things were…shall we say…"cleared out"? he felt much better, and then slept for a few hours.  Poor baby.

(And, please, before you pass judgment on my allowing this scenario to occur…we had taken several preventative measures to avoid this particular side effect of the antibiotics – including increased water and juices, herbal laxative, daily probiotics, etc…but they weren't enough, apparently.)  😦

The antibiotic is finished, but we will have to continue to monitor the situation for several more days.  I think I must pray for wisdom more than anybody else I know.  I just feel so clueless about this boy of mine on some days. :o/

I am still grieving over losing Gail.  Doug and I both found ourselves very grumpy toward each other on Saturday – just being impatient and unkind with our words.  I went to my room, just to give myself a "timeout" really.  In my inbox was an email from a friend who was just checking up on me, and telling me she was praying for me. 

Suddenly, I realized mine and Doug's attitudes were not really directed at each other, but just a side effect of our grieving about Gail.  When our busy week was over and we had a few minutes to allow our brains to rest, our thoughts turned to her, and the sadness just sort of took over.  It's natural, I'm sure; but I hadn't stopped to analyze it.  I just knew everything was bugging me, and since Doug was the only person I was interacting with, he caught the brunt of those emotions.

To be sure, we made things right with each other within the hour.  We have been committed for many years to not harboring hurt feelings and grudges against each.  We try to practice the following verses from Ephesians 4:

[26] Be ye angry, and sin not: let not the sun go down upon your
wrath:

[27] Neither give place to the devil.

That practice certainly came in handy on Saturday.  It was good to have the peace restored in our home, and to be able to vocalize a little bit that our hearts were feeling.

I am feeling much better after taking the antibiotic for the bronchitis, but I'm a little concerned that I may still have a sinus infection on board.  I have been using my neti pot, and I hope it will clear up any residual infection.  I am also dealing again with some other physical issues that I have had trouble with from time to time – not to the same extent as before, but just enough to have me feeling very run down and dragging a bit.

I do appreciate your praying for me when the Lord lays me on your heart.  I feel like we have been a very "needy" bunch at our house lately!  But then I remember that is ok.  The Psalmist worded it quite well for me:

Psalm 40:17 But I am poor and needy; yet the Lord thinketh upon
me: thou art
my help and my deliverer; make no tarrying, O my God.

I look forward – with great anticipation! – to sharing with you when we are all feeling better and back to normal. 🙂

God bless you as you begin this new week,

Alesha

Shut the Door, the Air Conditioner’s On!

I am so happy to let you know that my friend, Mrs. C, is at home now, recovering from her month-long ordeal.  She is healing well, so let's pray that continues! 🙂

She is actually the one who suggested I share the following picture with you, after I shared it with her this morning:

 

Acunit


This is our air conditioning unit, as seen from my bedroom. :)  She is quite a monster, I know!  But she gushes forth lovely, cool air to keep (most of) our house at a moderate temperature.  My dad is eventually going to be ducting those 3 holes to the individual rooms in our house; and the plan is to wall this corner in like a closet with some pretty louvered doors.

So, now that our temperatures have hit the 90's, we are staying nice and cool with our "lovely beast".  I am thanking the Lord for all the ways He is blessing me lately. 🙂

Isaac has been sick for the past 3 weeks.  At first it was just a cold, but it eventually turned into a sinus infection. 

And with the illness came the seizures. 

I'm sad to tell you about that, really.  I don't want you to be discouraged that we have lost ground again.  It's ok, really.  We had about 2 months of such clarity with him, and we wouldn't trade that for anything.  It was really wonderful.  We don't like the seizures, but they "normal" for Isaac, and we are not complaining.

Here's something yummy we tried today:

Kalesalad 

It's called "Sweet Annie Kale Salad" from the recipe book "How We All Went Raw".  It was quite a surprise to us that we both liked it.  Next time, though, I will add more garlic, and substitute craisins for the raisins.  You know I always tweak everything!!! 🙂

I've got a few new smoothie recipes I'll try to share with you soon, too.  We are diligently trying to get back to our healthy eating plan.  We begin to feel lousy and sluggish when we are not sticking with it as we should. 

I have been sick for about 2 weeks:  bronchitis, according to my
self-diagnosis.  I am on antibiotic now, but the cough is
l-i-n-g-e-r-i-n-g – unfortunately.  I hope to be back to church and
choir and LIFE soon! 🙂

No new report on Mama Gail.  I'm sure we will be talking with Mike
soon, and will let you know if there has been any change.

Keeping my eyes set on Jesus (because, really, what else is there?),

Alesha

A Birthday Post By Isaac

Hello…it's my birthday!  Happy to have you along to celebrate…ME!!!

Sohappy

These are my ribbons…they make me really happy.

Ikeinmotion3

Please don't bother me now…the ribbons are in play.

Dontbother

WHAT?  Did you say there was CAKE???  That is just FABulous!

Yaycake

This is what I'm talkin' about…cupcakes, baby!  Oh yeah…

Ohyeah

Wait a minute…don't even think about it…

Donteven

Hey, get outta here…this is my cupcake, dude!  Hands off!!!

Getout

Oh, wow, bite of cupcake and a Hallmark card…it doesn't get any better than this.  Yes, I'm reading it…why do you ask???

Cupcakehallmk

Whoo hooo…it's my birthday, it's my birthday, it's my birthday!!!  DOUBLE DIGITS, man!!!

Whoohoo 

So glad you could drop by to share my special day.

Oh, and just one more thing before you go..

Yaaaaaaaaay, ME!!!

🙂

Wonder of Wonder, Miracle of Miracles


My son turns 10 years old today!!!

DSCN0472

Mr. Cool

Isaacinmotion

Ike in Motion series, No. 1

Ikeoutside 

Chillin' on the porch

Ikeinmotion2 

Ike in Motion series, No.2

We will be celebrating the miracle that IS Isaac today!!!

Happy Birthday, Isaac Nicholas

~ our son of
promise, our laughter, our victorious warrior!

We love you with all our hearts.

Daddy and
Mama

Let the Home Schooling Begin!

It's been a busy week for us here in HOT, sunny Florida.  Summer has arrived right on schedule and we are already seeing temperatures in the mid-90s – which is as it should be!  It is Florida, after all.

This is the first week, since I was down with my back, that I have tried to integrate caring for Isaac and actually doing a little house work too.  That's why I haven't been here blogging – just too busy!  It seems that everything takes me twice as long as it did before.

On Tuesday, while Doug and Isaac went to therapy, my Dad took Mama and I to the dentist.  Now doesn't that sound like a fun outing???  I was glad to be with good company, but would have rather gone shopping or something! :) 

The rest of the week I spent trying to keep Isaac in dry ribbons!  He is a chewing maniac these days.  It's so funny after almost 3 years of putting nothing in his mouth, he has constantly got something he's trying to chew on.  

We have been working on his relearning some things this past week.  We're starting with the word "gentle".  He is really giving his therapists a difficult time, and has started swatting at them when they stretch or move something in a way that he doesn't like.  He doesn't have much control, and so the swatting can really hurt.  Even when he's playing with me, now, he whacks and doesn't realize how hard it is.  So, we are working on "gentle".

I am also working with him on retrieving his own toys when he loses track of them.  His default behavior is to whine – repeatedly – quietly – yet with every breath – until I come and "fix" whatever is wrong.  Whether he wants a different video, or to listen to the radio, or if he needs dry pants, he just does his "nagging" as I call it. 

So, I am trying to prompt him, when I know he's just misplaced his toys, to find them for himself.  Usually they are up under his arm, and he has a hard time finding them, because he can't see them.  I help him to reach over with his opposite hand to find them.  I am also helping him to sit up and reach down the bed for them, when he's just tossed them beyond his reach.  He is always so delighted when he gets them.

We are also teaching him the word "drink".  I am using his lemon swabs to give him tastes of different juices.  He gets a little of the liquid without my pouring it into his mouth, which could cause him to aspirate.  Some days he wants several "drinks" and other days he's not interested; but since it's getting so hot, I thought it was a good things to work on.  He drools so much when he chews on toys, and I don't want him to get dehydrated in this weather.

So, I guess I sorta-kind started Isaac's home school lessons again, didn't I?  I really didn't realize it, until I started telling you all about them.  These are the sorts of things we worked on before, although in greater number each week.  We will add things each week, as he understands more and more.

Today, he enjoyed baked sweet potato with me for lunch.  He chewed and swallowed every bite.  Doug said none of it ended up on his bib!  (He used to taste things, but then let them slide out of his mouth instead of swallowing.)  Sweet potato used to be his favorite baby food, too!  We're on the right track, I'd say! 🙂

I am looking forward to my fresh, new week.  I am especially praying for my sweet friend, Mrs. C, who is recovering from surgery.  I'm also praying for a friend's son, who seems to be straying from the Lord.  You know it is never too late to ask for God to draw the prodigal back home.  He is a loving, gracious and forgiving God – as I can personally testify!

May you see God's Hand in your life this week, as He moves to accomplish His will in you!

Alesha