Friday, 23 February 2007

Isaac had a short seizure
last night after supper and then started vomiting around 3:30am – that
continued until around 6 this morning.  He's been fine although weak

tonight he had more short seizures, then started vomiting around
10:30.  We'll of course be headed to the doctor tomorrow.  The vomiting
can be from delayed gastric emptying or from shunt malfunction.

Monday, we head to Miami Children's
Hospital to be seen by an epilepsy specialist.  Please pray that there
is a room available at the Ronald McDonald House – we're on the waiting
list right now.

of course, please pray that his stomach will settle and he can sleep
tonight – and so we can get sleep too.

Whew, it's been a loooooooong day.


Update on Isaac’s sleeping

I forgot to update on Isaac's night time escapades!  
He slept from 11 PM to 7 AM last night.  Not bad, but not as great as
the night before.  And tonight…it's almost 11 PM and he's still going
strong!  Hopefully he'll conk out soon!

Thursday, 22 February 2007

We have a family of hawks that nest near our
house each winter.  Sometime in January or February we start seeing
their shadows cross our yard, then we occasionally hear them. 

  • This year, they are using a nearly-dead tree
    right beside our house as their outlook post.  (It was hit by lightning a
    couple of years ago, then the hurricanes of 2004 really gave it a
    beating.  It it basically the trunk and 2 or 3 limbs.)

    My hubby and I have been trying for days to
    get a good pic, but to no avail.  This is the best we could do so far.


    he cool – at least I think this is the dad!  They are
    so well camouflaged, they are hard to see.  We're going to try this
    weekend to get some really good shots.

    Doug said he saw one of them take on a buzzard twice their
    size today.  And the hawk won!  Just dove right down on him in the sky
    and sent him hurdling in the opposite direction.

    I can't wait until their eggs hatch.  You can
    actually watch them as they teach their babies to hunt – in our
    backyard!  One year I watched one of the babies catch what I'm assuming
    was a mouse right at the edge of our property.  So cool!

    They are soooooooo noisy, too, when the
    babies are first hatched.  You can hear the parents crying out to the
    babies and then they answer in this high-pitched version of the parents
    cry.  These parents work hard to train their hatchlings
    how to live and work.

    when our human babies are small we, as parents, start teaching our
    children the life skills they need to survive.  We let them wander
    further and further from our nest all the while calling out to them,
    reminding them of our presence, of our beliefs, or our foundations.

    I don't know why so many parents today think
    parenting is easy, and then when it gets a little rough, they wimp out
    and allow the child to control the home.  We are not loving truly when
    we allow that with our little ones.  We are loving self more than loving
    the child enough to do what is best.

    Parenting is hard, and it's about sometimes making the hard
    decisions.  But it is ultimately the most rewarding job of all – when
    we can send them out from the nest and know that they can survive on
    their own.

    The daddy hawk
    tends to sit on our back fence while the little ones are playing in the
    yard.  He always looks so proud!  The mama is usually flitting from baby
    to baby, I'm sure checking to see that they are warm enough, finding
    enough food, and reminding them of how to catch the tastiest treat.

    We busy mamas need to learn to sit back
    occasionally and just watch…and be proud of our offspring.  Take a
    break today and be marveled by the miracles that are your children.


Wednesday, 21 February 2007

Praise the Lord - Isaac slept through the
night last night!(I've given up trying to come up with a nickname,
because I start writing and then forget and use his name.)

Laura, I know you will understand my elation about
him sleeping all night! 

With all
of his diagnoses, a full night's sleep is a thing to be celebrated and
announced with much rejoicing.

We have just recently gotten a "hospital bed" for
him to sleep in.  (He had been sleeping in a recliner for about a year –
due to stomach issues and "kicking" issues.  If laid down flat in a
bed, he kicks himself into a sweaty frenzy and will stay awake all
night.  Thus, the recliner.)

with the head elevated and the "knee bend" in the middle, he'd been
doing fair – not too much kicking – but still not sleeping all through
the night.  And also he's been sleeping in a horrible position.  I know
for most kids any position will do, but for kids with CP a night of
sleeping with legs bent and toes pointing makes for a day of leg and
foot spasms and cramps.

therapist suggested putting his leg braces on for the night and using a
bolster under his knees.  It worked like a charm!  He was asleep by 8:30
and slept for over 12 hours.  Glory hallelujah!

Needless to say, we'll be trying it again tonight –
we'll see how it goes.

The weather
here is beautiful today in the Deep South – mid 70s and blue skies.  I
don't mean to rub it in – I'd appreciate some beautiful snow every now
and then, too. 

I even got
to eat lunch outside with my hubby today, while Isaac did Occupational
therapy in the clinic.  That was a nice treat.

Ya'll have a peaceful day,


Monday, 19 February 2007

Whew…long day today.  One of
those where you go non-stop but don't really accomplish anything? 

I really like to finish tasks.  Everyday I
have a list on my Microsoft Outlook that keeps my tasks tallied up and
when I complete them, I can mark them 100% complete.  I love that!!! 

I also print that list out so I can get
the satisfaction of actually MARKING them off! 

My hubby thinks I go a little overboard
with my lists! LOL!  But that's how I get things done.  If I don't have a
list (especially at work) I just get "fractured" in my focus and sit at
the desk thinking "what am I supposed to be doing NOW?" 

The truth is that I'm actually very
easily distracted!  My lists keep me focused.

Are you a list-maker?

What is the oddest thing you've ever made
a list for?

btw, boys make lists too.  Their called "box scores" and "stats"! 

Hope your day is really "complete"!


Sunday, 18 February 2007

I love the nickname's
everyone uses for their children and spouses – very interesting and
creative names.  So I'm trying to come up with something for my son.

Until then…

knew he wasn't feeling quite himself today.  Usually hubby and I take
turns going to church if he's not well.  This morning was my turn to
go.  But I just didn't feel peaceful about that and hubby gave me
freedom of choice about it.  (We've been in the ER twice in the past 2
weeks with my son, he hasn't been sleeping all night, and I work

Sure enough we had
seizure # 7 of the past 10 days.  Another phone call to the doctor
tomorrow.  We've increased his meds twice during the past 2 weeks. 
Should not still be having breakthrough seizures.

Very bothersome!

going to a specialist on the 26th.  I'm very skeptical that they can
really tell us anything new.  I know God can give them wisdom from
above, though.  I just hope it's not dependent on MY faith.  It is
really lacking that we can/will find a rhyme or reason for these

It's a beautiful day,
though pretty cool again for this Southern girl.  I'd love to re-pot
some of my outdoors plants, but it's a little early yet.  So I guess
I'll wait awhile.

Here's my boy on a
much better day in  December. 


Here's his list of

epilepsy, cerebral palsy, asthma, GERD, delayed gastric emptying,
various eye diagnoses, developmental delays, non-verbal (for the most
part – he can say a few words with great meaning - "more", "hello",
"Ma", "wuv", and his latest accomplishment "hah-ay-ooo-uh"
{hallelujah}), and non-mobile.

what I think about him:

He's the
joy of my heart and love of my life, second only to my hubby. 
We adopted him at 18 months old.  Next Thursday will be the 5th
anniversary of his "Gotcha Day". 

Here's what I believe about being in this trial:

There is a reason.  Some other doctors and nurses
must need to meet my boy.  Right now, only beauty is helping me stay
balanced – beauty in God's word, in God's nature, in the pics and
stories on some other's blogs.  Those things are helping.

And I am grateful.


Saturday, 17 February 2007

Just a quiet day with my

It was really cold here
(for the South), so we stayed cozy in the house all day. 

Remember in the 80's when buttons were all the
rage?  My hubby loved them – he's not a very outspoken person, but he
could speak his mind by wearing buttons. 

A week before Valentine's Day, he and my son were
out of town for one of my son's doctor's appointments and they dropped
in a large bookstore.  Guess what he found!  And guess what I received
every morning for a week!


Aren't they cute? 

I am so loved.



Praying for all to have a blessed Sunday,