Wednesday, 21 February 2007

Praise the Lord - Isaac slept through the
night last night!(I've given up trying to come up with a nickname,
because I start writing and then forget and use his name.)

Laura, I know you will understand my elation about
him sleeping all night! 

With all
of his diagnoses, a full night's sleep is a thing to be celebrated and
announced with much rejoicing.

We have just recently gotten a "hospital bed" for
him to sleep in.  (He had been sleeping in a recliner for about a year –
due to stomach issues and "kicking" issues.  If laid down flat in a
bed, he kicks himself into a sweaty frenzy and will stay awake all
night.  Thus, the recliner.)

with the head elevated and the "knee bend" in the middle, he'd been
doing fair – not too much kicking – but still not sleeping all through
the night.  And also he's been sleeping in a horrible position.  I know
for most kids any position will do, but for kids with CP a night of
sleeping with legs bent and toes pointing makes for a day of leg and
foot spasms and cramps.

therapist suggested putting his leg braces on for the night and using a
bolster under his knees.  It worked like a charm!  He was asleep by 8:30
and slept for over 12 hours.  Glory hallelujah!

Needless to say, we'll be trying it again tonight –
we'll see how it goes.

The weather
here is beautiful today in the Deep South – mid 70s and blue skies.  I
don't mean to rub it in – I'd appreciate some beautiful snow every now
and then, too. 

I even got
to eat lunch outside with my hubby today, while Isaac did Occupational
therapy in the clinic.  That was a nice treat.

Ya'll have a peaceful day,


Monday, 19 February 2007

Whew…long day today.  One of
those where you go non-stop but don't really accomplish anything? 

I really like to finish tasks.  Everyday I
have a list on my Microsoft Outlook that keeps my tasks tallied up and
when I complete them, I can mark them 100% complete.  I love that!!! 

I also print that list out so I can get
the satisfaction of actually MARKING them off! 

My hubby thinks I go a little overboard
with my lists! LOL!  But that's how I get things done.  If I don't have a
list (especially at work) I just get "fractured" in my focus and sit at
the desk thinking "what am I supposed to be doing NOW?" 

The truth is that I'm actually very
easily distracted!  My lists keep me focused.

Are you a list-maker?

What is the oddest thing you've ever made
a list for?

btw, boys make lists too.  Their called "box scores" and "stats"! 

Hope your day is really "complete"!


Sunday, 18 February 2007

I love the nickname's
everyone uses for their children and spouses – very interesting and
creative names.  So I'm trying to come up with something for my son.

Until then…

knew he wasn't feeling quite himself today.  Usually hubby and I take
turns going to church if he's not well.  This morning was my turn to
go.  But I just didn't feel peaceful about that and hubby gave me
freedom of choice about it.  (We've been in the ER twice in the past 2
weeks with my son, he hasn't been sleeping all night, and I work

Sure enough we had
seizure # 7 of the past 10 days.  Another phone call to the doctor
tomorrow.  We've increased his meds twice during the past 2 weeks. 
Should not still be having breakthrough seizures.

Very bothersome!

going to a specialist on the 26th.  I'm very skeptical that they can
really tell us anything new.  I know God can give them wisdom from
above, though.  I just hope it's not dependent on MY faith.  It is
really lacking that we can/will find a rhyme or reason for these

It's a beautiful day,
though pretty cool again for this Southern girl.  I'd love to re-pot
some of my outdoors plants, but it's a little early yet.  So I guess
I'll wait awhile.

Here's my boy on a
much better day in  December. 


Here's his list of

epilepsy, cerebral palsy, asthma, GERD, delayed gastric emptying,
various eye diagnoses, developmental delays, non-verbal (for the most
part – he can say a few words with great meaning - "more", "hello",
"Ma", "wuv", and his latest accomplishment "hah-ay-ooo-uh"
{hallelujah}), and non-mobile.

what I think about him:

He's the
joy of my heart and love of my life, second only to my hubby. 
We adopted him at 18 months old.  Next Thursday will be the 5th
anniversary of his "Gotcha Day". 

Here's what I believe about being in this trial:

There is a reason.  Some other doctors and nurses
must need to meet my boy.  Right now, only beauty is helping me stay
balanced – beauty in God's word, in God's nature, in the pics and
stories on some other's blogs.  Those things are helping.

And I am grateful.


Saturday, 17 February 2007

Just a quiet day with my

It was really cold here
(for the South), so we stayed cozy in the house all day. 

Remember in the 80's when buttons were all the
rage?  My hubby loved them – he's not a very outspoken person, but he
could speak his mind by wearing buttons. 

A week before Valentine's Day, he and my son were
out of town for one of my son's doctor's appointments and they dropped
in a large bookstore.  Guess what he found!  And guess what I received
every morning for a week!


Aren't they cute? 

I am so loved.



Praying for all to have a blessed Sunday,


Friday, 16 February 2007

100_2858 solo gerber daisy

Don't you just love gerber daisies?  I think
they are very friendly flowers. 

My hubby brought these home on Valentine's Day.  I love that
they have to have little plastic sheaths for their slender stems to hold
up those beautiful huge blossoms.  It seems so self-sacrificing of them
to blossom so beautifully.  Hmmm…

Are there times you feel if you don't take a few moments just
to drink in something beautiful your heart will just wither and dry up? 

God's creation holds so
many beauties for us.  I am guilty of not taking enough time to stop and
notice.  It's as if all at once I realize I'm starving for beauty.

I want to pay attention.  I don't want to miss
the beauty.  I need the beauty.  It feeds my soul.

God's Word holds many beauties.

3: 19- 20

Behold, at that time I will undo all
that afflict thee: and I will save her that halteth, and gather her that
was driven out; and I will get them praise and fame in every land where
they have been put to shame. 

At that
time will I bring you again, even in the time that I gather you: for I
will make you a name and a praise among all people of the earth, when I
turn back your captivity before your eyes, saith the LORD.

Isn't that
pretty?  Doesn't that just make your heart well up with gratitude for
the loveliness of it?

So many things He has given to make our lives
beautiful.  Let's make the time to stop and take them in, let them
linger awhile in the dark corners of our heart, until they begin to
light us up from the inside out. 

His beauty –
shining from us. 

 Hmmm…allowing His sheath of the Holy Spirit
to hold our stems straight while we sacrifice ourselves to show forth
His beauty in the blossoms of our life.

Friend, blossom
and shine for Him today!


Thursday, 15 February 2007

Isn't it amazing how non-Christians react when they are faced with
their own mortality?

A co-worker today was told of a relative's
diagnosis with a possibly-contagious disease.  Immediately she panicked
as she thought of her herself and her own children who had been in
contact with the relative.  Her terror was palpable.

She had been
faced with her own mortality – and worse, the mortality of her children.

the parent of a special needs child, I face my son's mortality on a
regular basis.  It is sobering and freeing all at the same time.  I
can't keep my child alive.  Neither can doctors, specialists or
medications.  Only the Lord can do that.

My child's life is not in
my control.  My own life is not in my control either. 

So I can
just relax, enjoy, roll with the punches, living each moment AS
it happens.  The future is completely out of my hands.

We can
enjoy life and have God's awesome peace throughout everything.  Life is
meant to be savored.

One of my best friends says, "Don't forget to
wear your party pants!" 

Each day is a joyous celebration of
life, love and God's goodness.

How has God showed His control in
your life today? 

Oh, how much He must love you then!  Don't
every doubt it!



Finding Me

Wednesday, 14 February 2007

There are things that lie in wait far below the
surface.  In the course of my usual day, these gems go ignored,
untapped and neglected.  Sometimes they are thoughts too deep for casual
conversation, silly whims that remain unvoiced, wild dreams that are
never acknowledged and brilliant observations that may never see the
light of day.

I want to find
an outlet for these things – they are at the very core of my being. 
They need to be explored, understood, shared and perhaps sorted and
whisked away.  If I never draw them out, I will never know.

So, here's to finding me…underneath the
everyday, mundane, exhausting, often joyous and miraculous existence
that my Creator has determined.
100_2834  If you care to
tag along, I will be humbly delighted.